1. Systematically define high-impact, high-demand clinical areas
How – Delphi??
2. Build personalized trial implementation platforms & resources
This is being done currently
3. Form multi-stakeholder collaboratives to inform best practices and policies
I think we should invite some patients/consumers to join our network
One for N-of-1s and one for SCEDs?
4. Construct open deep phenotype data bank
We need to decide whether to do a rare disease or CF or a common problem like insomnia. Maybe use results from high-impact, high-demand clinical areas exploration to define the area we address.
What are your thoughts on how we can address these strategies suggested by Karina Davidson?