Vision: A world where personalised clinical studies (for both single and groups of individuals) are an integral part of clinical practice and health research

 

Mission: To promote, support and advance the use of personalised clinical studies, and to share relevant knowledge, experience, expertise, resources, and data through our global partnership between researchers, healthcare professionals, and patients. 

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Objectives:

 1) To raise awareness of, and promote use of, individual and pooled personalised clinical studies (N-of-1 and SCEDs) 

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2) To collaborate with organizations across the globe, to share experience, knowledge, expertise, resources, and data, and to build capacity for personalised research 

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3) To support consumers, researchers, and clinicians involved in conducting and translating personalised research into clinical care 

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4) To promote and provide opportunities for people interested in N-of-1 and SCED designs to meet, communicate, and collaborate (to learn and achieve the synergetic effects of sharing concerns and reflections), for example through meetings and online through listservs, webinars etc

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5) To positively impact policy and practice and thus health, economic, and social outcomes

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6) To contribute to ongoing development of international standards and guidelines to promote rigorous design, conduct, and reporting of individual and pooled N-of-1 and SCED studies 

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7) To promote use of digital technologies to facilitate data collection and management in personalised clinical studies 

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